Tag Archive for: tissue donation

Headshot of Dawn Romano

Breast Reconstruction Awareness Story: Dawn Romano

Dawn Romano, LCSW, LSCSW, MTN Family Services Coordinator III, opened up about her breast reconstruction experience for Breast Reconstruction Awareness (BRA) Day

Headshot of Dawn Romano

Dawn Romano, MTN staff member and breast cancer survivor

Dawn Romano is a clinical social worker who works in organ and tissue donation as a Family Services Coordinator for Midwest Transplant Network. In April 2008, Dawn’s life changed when she was diagnosed with an early stage of breast cancer. After undergoing a lumpectomy and 33 rounds of radiation, Dawn believed she was cancer-free and continued on with her life.

Things changed in the summer 2015 when Dawn felt a lump on her breast. Later, while getting a mammogram and biopsies, doctors confirmed that they had found two tumors. The cancer had returned, this time more aggressive. “Tears streamed from my eyes,” she recalled. “Reality had slapped me in the face.”

Through four grueling months of chemotherapy treatment, hair loss and discouragement, Dawn found strength from her faith, friends and family to continue working in organ and tissue donation. After undergoing a double mastectomy, Dawn and her surgeon discussed the possibility of breast reconstruction. “Thankfully, from my work at Midwest Transplant Network, I knew enough to ask my surgeon whether they would use any human tissue during my surgery. He told me yes,” she shared.

Thanks to the gift of skin from two donor heroes, Dawn finally began to heal. Her experience has also helped her develop a deeper appreciation of her work, especially donor families. “We often hear that tissue donation is life-enhancing, but for many of us, it has saved our lives in many ways,” Dawn shared. “This gift has made a huge impact on my life. To all donor families, please accept my deepest and most sincere thank you. You and your loved ones have made a difference in so many people’s lives. And for that, they will always be remembered by people like me.”

Story courtesy of MTF Biologics

Breast Reconstruction Awareness Story: Lisa Cummins

In honor of Breast Reconstruction Awareness (BRA) Day, MTN Quality Assurance Coordinator II Lisa Cummins, ASQ-CQIA, spoke about her journey with breast reconstruction. 

Headshot of Lisa Cummins

Lisa Cummins, MTN staff member and breast cancer survivor

For over 40 years, Lisa Cummins has worked in organ and tissue donation at Midwest Transplant Network. Her story begins in 2001, when she was first diagnosed with a rare type of cancer found in her uterus. Following a hysterectomy and five rounds of chemo, Lisa celebrated being cancer-free, but not for long.

“I had just hit my five-year mark when they found my first breast cancer,” she recalled. Diagnosed with an early stage of DCIS, or ductal carcinoma in situ, Lisa again underwent intense radiation treatment and another major surgery — this time using donated tissue. For the second time, Lisa believed she was cancer-free before receiving terrible news.

“At my five-year anniversary appointment — the golden mark where cancer patients can consider themselves true survivors — they found my second breast cancer,” she shared. Doctors confirmed that the cancer had returned in the same breast, this time more aggressive. Surgeons presented Lisa with the option of a mastectomy — a decision she would take one step further. “I decided that I did not want to go through it all over again, so I opted to have a double mastectomy,” she explained. Afterwards, Lisa underwent breast reconstruction, becoming a tissue recipient for the second time.

Today, Lisa celebrates being 11, 16 and 21 years cancer-free! Thanks to the gift from her donor, she returns to helping others in organ and tissue donation with a deeper appreciation for her life and work. She even uses her story at local hospitals, video conferences and live events to aid others through their breast cancer journeys and share the positive impact of donation. “There is not a day that goes by that I do not think of my donor families and am thankful for their selfless act of donation,” Lisa said, smiling. “I do not know who they are, so at every chance I get, I tell donor families ‘THANK YOU!’ Without their gift of life, I wouldn’t have been able to have reconstructive surgery. I can now say I am a survivor!”

Story courtesy of MTF Biologics

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Partner Spotlight — Stefanie Dotson, Maryville Licensing Bureau

In honor of National DMV Appreciation Month, we asked Assistant Manager Stefanie Dotson of the Maryville (Missouri) Licensing Bureau about her important role in the donation process. She also shared her personal ties to organ, eye and tissue donation in this Q&A.

Stefanie Dotson with her nephew, donor hero Aiden Jones

Maryville Licensing Bureau Assistant Manager Stefanie Dotson (left) with her nephew, donor hero Aiden

Q: Tell us a bit about the role the DMV plays in organ, eye and tissue donation.

A: As a DMV worker, any time I issue a permit or driver’s license, we ask if they would like to be an organ, eye and tissue donor. I have found that many people are unaware of the program and have no knowledge of the benefits. At that time, I am able to inform them with the facts and use my personal experiences so they can make the right decision for them.

 

Q: Tell us about your connection to organ, eye and/or tissue donation.

A: I have several connections to the organ, eye and tissue donation program. I have a friend who has received two kidneys, and I’m happy to report she’s doing great. My mother-in-law had three kinds of cancer, and my husband was still able to donate her corneas when she passed. The one most dear to my heart is my organ donor hero nephew. He was 16 years old when tragedy struck, and we found ourselves devastated by the news he would not be going home with us. I looked at my sister and said, “You know what the next question is, right?” She said, “No, what?” I said, “Do you want to donate his organs?” She took a bit to talk it over and decided she would. The honor walk was amazing. My sister has since received letters from some of the recipients, which have been amazing to read.

 

Q: How does your specific office help inform and educate patrons on the importance of joining the donor registry?

A: Our office always tries to find fun ways to open up the conversation about being a donor. We like to participate in any decorating contests that are available, we have different displays with facts about being a donor and we include the people we know are recipients or have become a donor hero in our display. Around the holidays, we decorate a tree with the donation colors and add bracelets for the public.

 

Q: Why do you feel your office’s efforts to promote the need for organ, eye and tissue donors are so important?

A: I feel it is important to inform people of the facts about being a donor. There are lots of misconceptions out there about the details that scare people away. When people are informed with facts, it’s easier for them to make the decision to be an organ donor.

 

Q: What is the biggest misconception you hear about donation that you hear in your personal and/or professional life?

A: The biggest misconception I hear is: “I was told I can’t donate my organs by this doctor because of this.”

My mother-in-law’s corneas were still used even though she had three different cancers.

 

Q: If there is one thing you’d want to share with others about the importance of joining the donor registry, what would it be?

A: I just would like people to realize how life-changing it is to be a recipient of an organ. Your loved one gets to live on and is celebrated by people you never knew existed because they are a part of your loved one, with them every day.

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Celebrating One Year of a World-Class Donor Care and Surgical Recovery Unit

One year ago — Sept. 1, 2022 — Midwest Transplant Network (MTN) opened its new Donor Care and Surgical Recovery Unit (DCU) after years of careful planning, preparation and training on the processes and technology associated with an in-house facility. Since then, with support from many hospital, professional and community partners, we have cared for 131 donor patients[1] from 29 area hospitals in our world-class DCU. These donor heroes provided 415 lifesaving organs to those who desperately waited for a second chance.

The DCU features a seven-bed onsite intensive care unit, two state-of-the-art operating rooms, a CT scanner with technology to conference remotely with physicians, a specialty laboratory and a family support lounge for donor heroes’ loved ones to gather if desired. Patients who meet certain clinical criteria may be eligible to move to the DCU, where MTN staff members continue administering high-level critical care until surgical teams begin organ recovery.

“It’s hard to believe we have already been providing expert care to donor heroes in our DCU for a year,” said Lori Markham, RN, MSN, CCRN-K, CPTC, MTN Vice President & Chief Clinical Officer. “We had a vision to create a specialized facility in-house for many years, and seeing it come to fruition has been so powerful. I am incredibly proud of our team for all their hard work, and I am grateful for all our partners that have come together to support this new process that allows for better outcomes.”

Since the DCU opened, MTN has enabled more organs per donor to be transplanted than before, with the average number of organs transplanted per donor increasing from 3.1 pre-DCU to 3.35 post-DCU opening among the same type of donor characteristics when recovered in donor hospitals.

“We anticipated that the DCU would allow a focus solely on the process of organ donation and ultimately create better outcomes for transplant recipients,” said Jan Finn, RN, MSN, MTN President & Chief Executive Officer. “It’s an honor to fulfill the mission of MTN in this incredibly important work and also recognize the need to continue innovating and improving to honor donor heroes and their families. We are proud to see our staff and facility working so well allowing us to extend the gift of life to even more recipients and provide hope for those awaiting a transplant.”

MTN staff members are highly trained in the complexity of caring for organ donor heroes in the DCU, which was designed specifically to maximize the gift of life; this can free up critical resources in area hospitals — such as intensive care unit beds and operating rooms — to serve other patients in need.

“My team has complete confidence in sending our patients to Midwest Transplant Network’s DCU,” said Carol Perry, Senior Vice President & Chief Nursing Officer, Stormont Vail Health; MTN Advisory Board. “The state-of-the-art facility allows MTN’s team of expertly trained staff members to provide specialized care for donors as their gifts are matched with recipients and throughout the organ, eye and tissue recovery process. Knowing our donor heroes are receiving high-quality care at the DCU allows us to dedicate resources to critically ill patients in our ICU.”

Out of 56 organ procurement organizations (OPOs) in the U.S., MTN is just the 12th organization with a donor care and recovery center that is not based in a hospital. Creating the DCU is one of many tactics MTN has taken to improve donation outcomes.

“It was hard to imagine the extent of possibilities and growth that would result from the opening of the DCU — and yet, as a team, we have successfully learned how to perform our own echocardiograms and liver biopsies, take X-rays and prepare our own slides for pathology, all while continuing to provide the best care possible to our donor heroes,” said Emily Freund, BSN, RN, CPTC, MTN Organ Procurement Coordinator III. “The DCU is proving to be key in our mission to increasing gifts transplanted.”

[1] All DCU data pulled from Sept. 1, 2022, through July 31, 2023.

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MTN Staff Spotlight – Britney Machin

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

 


MTN Staff Spotlight…
Britney Machin, Tissue Services Shift Leader

Britney’s professional career in healthcare includes experience as a community liaison in a clinical setting. She earned a Bachelor of Science in community health with a minor in psychology from the University of Central Missouri. She will complete a master’s in business administration with an emphasis in health administration from her alma mater in May 2024. Britney joined Midwest Transplant Network in September 2020 and is coming up on her third MTN anniversary.

If you had to choose between living without air conditioning or social media, which one would you give up?

I would give up social media.

Favorite local restaurants in the metro?

Garozzo’s, Vietnam Café and Q39.

Your most memorable trip experience — good or bad?

I’m from a blended family, and I’m one of four children. When I was 10, we went to California with all of my siblings and family. We visited my maternal grandparents, went to my aunt’s 50th wedding anniversary, went to the beach, the San Diego Zoo, SeaWorld, Disneyland and Magic Mountain. We packed a lot into a week!

You’re talking about your job to a stranger. How do you explain what you do for a living as simply as possible?

Hmmm…I can tell someone I recover skin from donor heroes to help burn victims. Or I recover bone, skin, tissue or muscle from donor heroes to help other people live.

Tell us about your culture and how it influences your conversations about organ donation.

My culture is Chamorro. My mother is from Guam, the largest of the Mariana Islands in the Pacific Ocean. Chamorro culture is having respect for all people, particularly for our elders, as well as our history and language.

The way I was raised influences how I speak about organ, eye and tissue donation. It’s respect for the donor families because you’re working on their behalf.

My brother-in-law is a kidney transplant recipient of 10 years, and I have an uncle who had multiple kidney transplants. He was nearly 60 when he passed.

Growing up, I heard misconceptions about organ, eye and tissue donation, like EMS and doctors won’t try as hard if organ donation is on your driver’s license. It’s totally false.

In my family, there is support for being an organ, eye and tissue donor. And in my family — due to it directly saving and enhancing so many of our loved ones’ lives — they want to make the decision on their own. If I’m asked about organ donation, I do my best to explain the process and address any misconceptions that I can.

Even though my family is open to organ donation, it’s different when it comes to ocular tissues because when a loved one passes, they need to be able to see their way to heaven. There’s a belief about being whole in heaven and in the afterlife, so organ, eye and tissue donation is personal.

In what ways do you advocate for organ donation?

The work is a form of advocacy for donation. When a loved one passes, you want to be respectful of their decision to be an organ, eye and tissue donor.

Give three reasons why someone should consider becoming a registered organ donor:

  • Your legacy lives on through another person, and the impact on another life is honorable.
  • It helps with healing for loved ones because they gave selflessly, and you can be proud of their decision.
  • It’s very important to tell your family of your decision to be an organ donor. It’s an affirmation of your choice, and your family will not have to make that decision for you.

What else would you like to say about organ donation?

To the donor heroes, “Si Yu’os Ma’ase,” which means thank you or “May God’s grace shine upon you” in Chamorro.

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MTN Achieves Top-Tier Rating From CMS

For the third consecutive year, Midwest Transplant Network is ranked among the top organ procurement organizations in the country by Centers for Medicare & Medicaid Services performance reporting.

The 2023 OPO Annual Public Aggregated Report shows that based on 2021 data — the most recent data currently available — Midwest Transplant Network is rated as Tier 1A and is third in the nation for both donation and transplantation rates.

There are 56 organ procurement organizations (OPOs) in the U.S. Each is ranked into one of three tiers based on donation and transplantation rates; each tier ranking has a letter — A to E — from highest to lowest possible performance.

Incorporated in 1973, Midwest Transplant Network is a federally certified, not-for-profit organ procurement organization that facilitates organ, eye and tissue donation in partnership with hospitals and other professional partners to give hope and share life. MTN’s service area is the state of Kansas and western two-thirds of Missouri, with its central office located in Westwood, Kansas, and satellite offices in Wichita, Kansas, and Columbia and Joplin, Missouri. MTN is commemorating 50 years of service in 2023.

“It is our privilege to support donor families and extend their loved one’s legacy,” said Jan Finn, RN, MSN, President & Chief Executive Officer, Midwest Transplant Network.

“We are proud to have achieved a Tier 1A designation among OPOs. It’s a reflection of our generous donor heroes, strong partnerships, dedicated staff members, and a commitment to innovation and improvement.

“Every day, we strive to save and enhance more lives through organ, eye and tissue donation, and we will continue to focus on these important efforts on behalf of donor families, transplant recipients and people on the waitlist,” said Finn.

More than organ procurement

In addition to organ procurement, MTN:

  • Recovers tissues for restorative and reconstructive procedures;
  • Conducts laboratory testing to support organ transplantation;
  • Recovers organs and tissues in a state-of-the-art Donor Care and Surgical Recovery Unit;
  • Provides 24/7 response on organ referrals from hospital partners;
  • Has staff dedicated to supporting organ, eye and tissue donor families with a variety of resources, including a two-year donor family support program;
  • Shares the importance of joining the donor registry through community engagement;

Has 245 hospital partners in its service area and collaborates with five transplant centers in the care, placement and transplantation of donated organs, including Children’s Mercy Kansas City, Research Medical Center, Saint Luke’s Health System, University of Missouri Health Care and University of Kansas Health System.

Improvements to increase kidney transplants

MTN participates in the national End-Stage Renal Disease Treatment Choices Learning Collaborative (ETCLC), which aims to increase the number of deceased kidney transplants, decrease the non-use rate and increase the use of kidneys with higher expected risk of graft failure. MTN has reviewed the way it manages donors and facilitates the recovery process, as well as the complicated allocation system to identify opportunities for improved data collection and analysis to ensure more people are helped through kidney transplantation.

“By taking a closer look at our donor management, recovery and allocation processes to make improvements and changes, MTN can help more people receive kidneys to improve their health and quality of life. We recognize the concern about kidneys that affect OPOs across the country, so MTN consistently looks for ways to make improvements that could save more lives,” said Lori Markham, RN, MSN, CCRN-K, Vice President & Chief Clinical Officer.

2022: A remarkable year for saving lives

Through MTN, the generosity of donor heroes and their families touched the lives of people in need:

  • 361 donor heroes shared the gift of life, resulting in 972 lifesaving organ transplants.
  • 1,593 cornea and tissue donor heroes saved and enhanced lives.
  • MTN’s lab performed 35,145 transplant-supporting tests ranging from blood counts, urinalysis, basic chemistry panels and more.

“We are proud to be among the top OPOs in the country, yet we know that we must continue working diligently and remain open to improvements if we want to see continued success. We will always follow our mission and vision to make a positive impact on behalf of all the people and communities we serve,” said Finn.

Legislative Changes

Recently, the Senate passed the Securing the U.S. Organ Procurement and Transplantation Network (OPTN) Act, S. 1668. The legislation will be sent to President Joe Biden to sign.

If signed, the bill will modify how the Health Resources and Services Administration (HRSA) funds and manages the OPTN, a public-private network of professionals involved in the U.S. organ donation and transplantation system. Historically, the contract to manage the network has been awarded to United Network for Organ Sharing (UNOS). The bill “expressly authorizes HRSA to award multiple contracts, or cooperative agreements to support the operation of the network and eliminates a cap on the amount of funding available for supporting the network.”

It’s unclear how the legislation might impact Midwest Transplant Network, however, MTN is supportive of efforts to modernize the U.S. transplantation system which are implemented without significant disruption to OPOs and transplant centers while respecting the charitable nature of organ donation and recovery in a way that encourages community participation and support.

Midwest Transplant Network is commemorating its 50th anniversary serving the people of Kansas and western Missouri. More than 7,000 organ donors from Midwest Transplant Network’s donor service area (DSA) have contributed to over 32,000 lifesaving transplants since MTN’s inception in 1972. Additionally, more than 23,000 tissue donors have given gifts in this timeframe, enabling nearly 250,000 life-enhancing tissue transplants for burn victims, cancer survivors, individuals with sports-related injuries and more.

Organ donor heroes from Midwest Transplant Network’s service area saved the lives of 12 people with an organ transplant in 1972. In 2022, that number was 972, illustrating the thoughtfulness of people in Kansas and western Missouri; the strong support from MTN’s hospital and community partners; and MTN’s commitment to continual improvement and saving more lives. 

MTN Ranks Third Nationally for Donation, Transplantation Rates

The Centers for Medicare & Medicaid Services (CMS) released the 2023 OPO Annual Public Aggregated Performance Report, which outlines individual organ procurement organization (OPO) performance in 2021, the most recent year for which data is available.

The report notes that of 56 federally certified U.S. OPOs:

  • 15 — including Midwest Transplant Network — are Tier 1 (26%),
  • 18 are Tier 2 (32%) and
  • 24 are Tier 3 (42%).

This report places all OPOs into one of three tiers based on donation and transplantation rates. Tier 1 OPOs have the upper 95% confidence limit at or above the top 25th percentile cutoff for both the donation and transplantation rates. Each OPO’s tier ranking also has a letter associated with it; A is the highest-possible performance for that tier and E the lowest.

MTN ranks No. 3 nationally for both donation and transplantation rates; it has been in the top three OPOs for both rates all three years that this report has been released.

Midwest Transplant Network’s assessment rating in Tier 1A reflects the quality, professionalism and excellence in partnerships throughout our service area, as well as the incredible generosity of organ, eye, and tissue donors and their families. It also reflects the commitment our staff members have to saving lives by honoring the gifts of organ, eye and tissue donation.

To learn more, view the full performance report.

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Midwest Transplant Network Presents Awards for Organ, Eye and Tissue Donation Excellence

Midwest Transplant Network staff members recognize their partners in saving lives through organ, eye and tissue donation by presenting the annual Excellence in Donation Awards to hospitals, individuals and organizations in our community.

Based on 2022 donation outcomes, Midwest Transplant Network presents the Excellence in Organ and Tissue Donation Awards to hospitals that had a higher-than-average number of families granting authorization for donation. The organization also gives these awards to exceptional partners in hospitals; licensing, treasury and Department of Revenue offices; medical examiner officers; funeral homes and beyond. These individuals made an extraordinary contribution to Midwest Transplant Network’s lifesaving mission.

To recognize these achievements, Midwest Transplant Network provided honored hospitals and individuals with an original piece of art created by Marlene Lewis. “Hope Takes Flight” showcases the transformative power of hope and the metamorphosis that occurs when someone is given a second chance at life. Vertically, the painting is an hourglass; horizontally, it becomes a butterfly. The idea of an hourglass transforming into a butterfly serves as a metaphor for the process of anticipation and the moment when one can soar.

Midwest Transplant Network collaborates with 250 hospitals and would like to recognize the following:

Organ and tissue excellence: AdventHealth Shawnee Mission; Boone Health; Capital Region Medical Center; Hutchinson Regional Medical Center; Kansas Medical Center; Liberty Hospital; Menorah Medical Center; Mercy Hospital Joplin; Overland Park Regional Medical Center; Research Medical Center; Saint Luke’s Hospital of Kansas City; Saint Luke’s North Hospital — Barry Road; The University of Kansas Health System St. Francis Campus; University Hospital, University of Missouri Health Care

Organ excellence: Children’s Mercy Kansas City, Freeman Health System, Mercy Hospital Lebanon, Moberly Regional Medical Center, University Health Lakewood Medical Center

Tissue excellence: LMH Health Hospital, Mosaic Life Care, Olathe Medical Center, Saint Luke’s East Hospital, St. Mary’s Medical Center

In addition to hospitals, Midwest Transplant Network collaborates with countless individuals and teams and would like to recognize the following:

Individual and group honorees: James L. Cook, DVM, PhD, OTSC Missouri Orthopaedic Institute; Rev. Becky Crouse DMin, MDiv, BCC, and Rev. Josh Morris, PhD, MDiv, BCC, Children’s Mercy Kansas City; Freeman Health System Donor Council; Linda Isaac, Midwest Transplant Network Ambassador; Jackson County Treasurer’s Office; Ashish Kulhari, MD, Research Medical Center; Darryl Nelson, MD, Centerpoint Medical Center; the Nickerson family; Yvette Richards, DMin, St. James United Methodist Church; Rabbi Jonathan Rudnick, Jewish Family Services; Jim Walker, MD, Ascension Via Christi St. Francis


About Midwest Transplant Network

Midwest Transplant Network has been connecting lives through organ donation since 1973. As the federally designated not-for-profit organ procurement organization (OPO) for Kansas and the western two-thirds of Missouri, Midwest Transplant Network provides services including organ procurement; surgical tissue and eye recovery; laboratory testing; and 24-hour rapid response for referrals from hospital partners. Midwest Transplant Network ranks in the top 10% in the country among OPOs, which reflects the organization’s quality, professionalism and excellence in partnerships throughout the region. For more information, visit mwtn.org.

All Heart: One Recipient’s Journey Back to Health

Each selfless gift given by an organ, eye and/or tissue donor has a true ripple effect: on patients in need of transplant, on the donor’s family, on those who provide care for the donor, on those who care for the recipient and far beyond.

In honor of American Heart Month, we asked heart recipient and volunteer Ambassador Brian Pitts to share his transplant journey. Brian’s powerful and inspiring story is one of so many that Midwest Transplant Network and our partners are fortunate to know.

Watch now!

MTN Celebrates 50 Years of Saving and Enhancing Lives

 

At the start of each year, Midwest Transplant Network reflects on the work we did to save lives with dignity and compassion in the previous 12 months, ensuring a focus on better serving donor heroes, their families and those on the waitlist. Our look back at 2022 is particularly significant as we celebrate our organization’s 50th anniversary of saving and enhancing lives.

We share the graphic below in honor of our 2022 donor heroes and the lives affected by their generous gifts.

Graphically designed image to highlight MTN's 2022 success using data. The background is purple with descriptions written in white and numbers shown in green.For a look even further back, MTN has added a historical timeline to our website that highlights key milestones in our 50 years of saving and enhancing lives. From our incorporation as Midwest Organ Bank in 1973 through the medical advances of the 1980s to improved technology in the 2000s and on through today — Midwest Transplant Network celebrates our past while looking forward to the innovations and improvements awaiting us in the future.

We invite you all to help us celebrate our 50th year by continuing to advocate for the importance of organ, eye and tissue donation. Encourage your family and friends to consider joining the organ, eye and tissue donor registry. And remind them to speak with their loved ones about their decision to be a donor. Engage with us on social media and attend our events, spreading the crucial message of giving hope and sharing life.

Our community is stronger because of collaboration with partners in advancing our lifesaving and life-enhancing mission. We thank you all for supporting us throughout the years!