heart – Midwest Transplant Network

Tag Archive for: heart

MTN Story of Hope: I.C. Collins

September 27, 2024/in

Blog,
News

/by Mitch Weber

Cornea and heart transplant recipient I.C. Collins

I.C. Collins is a cornea and heart recipient and a volunteer Ambassador for Midwest Transplant Network (MTN).

“You only get one life, and at any moment, it can be taken away.”

I.C. Collins had been healthy until a bacterial eye infection led to him struggling with his vision. Despite receiving aggressive vision treatment, he still had eye difficulties.

Meanwhile, he began suffering from what he believed to be seasonal allergies. Nothing helped, and doctors assumed he must have previously had COVID-19 and had lingering symptoms. One day, a coworker mentioned that he didn’t look healthy and insisted that he see a doctor.

A cardiologist informed I.C. that his heart was failing. He was placed on strong medication to try to heal his heart.

Amid the chaos of learning about his heart failure, I.C. received a corneal transplant for his injured eye; he eventually also received a heart transplant.

“You only get one life, and at any moment, it can be taken away,” said I.C.’s son I.C. Collins IV. “For him to get the heart and for his body to receive it so well, it’s an awesome thing.”

Since his transplants, I.C. has become a volunteer Ambassador for Midwest Transplant Network, educating others about the importance of organ, eye and tissue donation.

“I decided I wanted to try to help as many people as I can,” he said.

To donor families, I.C. has one simple message: “Thank you from the bottom of whoever my donor’s heart was.”

MTN Story of Hope: Jimmy Cansler’s Journey to a Second Chance at Life

August 20, 2024/in

Blog,
News

/by Mitch Weber

“I’m very thankful for the family that made the sacrifice to save me.”

In the summer of 2020, as the world grappled with the uncertainties of a global pandemic, 25-year-old Jimmy Cansler faced his own personal health crisis. What began as a persistent cough, which he initially thought was a sign of COVID-19, soon turned into a battle for his life. Despite being young and healthy, Jimmy’s condition rapidly deteriorated, leading to a shocking diagnosis: he needed a heart transplant.

The news was devastating. The reality of waiting for a donor heart amid a pandemic, when families were forced to stay apart, added another layer of difficulty. However, shortly after Jimmy was placed on the transplant waitlist, he received word a heart was available.

On the day of the surgery, Jimmy’s family was unable to be with him in the hospital due to COVID-19 restrictions, so they gathered at a nearby bar and grill, anxiously awaiting news. Then, they witnessed something extraordinary. “It was a surreal moment when we saw a helicopter land, and I knew that that was his heart,” recalled Ashley Garcia, Jimmy’s sister. “I knew that meant his heart was here, and it was either going to work or it wasn’t. An hour and a half later, we got the call that everything went well.” The transplant was a success, and Jimmy was given a second chance at life. But the experience left a lasting impact on the entire family, especially as they thought about the person who made this miracle possible… Jimmy’s donor. “When I think of beauty beyond, I think of how we can live our lives with grace and gratitude for families that are losing someone in order to save another life,” said Ashley.

For Jimmy, the gift of life is something he carries with deep appreciation. “I’m very thankful for the family that made the sacrifice to save me,” he said. “I’m grateful, and I want them to know that.” Today, Jimmy and his family continue to honor the memory of his donor, even though they remain anonymous, living each day with a renewed sense of purpose and gratitude. Jimmy’s story is a powerful reminder of the incredible impact that organ donation can have, not only for the recipient but for everyone involved.

MTN Spotlight – Kevin Calhoun, Recipient

June 13, 2024/in

Blog

/by Mitch Weber

Celebrating Father’s Day: “A heart transplant allowed us to have our son.”

A heart transplant, an athletic competition, and a chance encounter that led to love are the elements of a great adventure, a life’s story, and a reason to celebrate Father’s Day.

In 2017, Kevin Calhoun traveled to Spain for the World Transplant Games. He’d had a heart transplant a few years earlier and was ready to compete in soccer and pétanque.

That same year, Kaci Keller was invited by a friend to support her at the World Transplant Games. Her friend asked “Do you want to travel with me? I want to go to Spain. I want to compete.”

Kaci said, “Yes, let’s go.”

Kevin lived in Kansas City and Kaci lived in Florida. They didn’t know each other but met at Team USA gatherings at the World Transplant Games, started talking and “kind of hit it off.” At the end of the week, it was time to go back home. Kaci shared part of a conversation with Kevin. “He said, ‘I didn’t come here looking for someone, but I like you. Can I call you when we get back to the states?’” They kept in touch with each other and within a year, they were engaged.

Now they have a family, and their son, Kyle, is 4.

“It’s such a blessing and we would not be here if it was not for the heart transplant that Kevin had and truly received the gift of life,” said Kaci.

“Kevin gets to celebrate Father’s Day because his heart transplant allowed us to have our son.”

“It’s the most fantastic thing in the world,” said Kevin. “Every day, I’m just amazed at our son’s smartness, creativity and his ability. I have my wife to thank, I have the Lord to thank, and my donor to thank. It sounds cliché but I until you’re a father, you really don’t know what it’s like.”

Kevin’s Heart Transplant Journey

In 2008, Kevin was diagnosed with cardiomyopathy – a disease of the heart muscle that causes the heart to have a harder time pumping blood to the rest of the body, which could lead to symptoms of heart failure.

For about eight years, he lived with the condition with medications, diet and a careful regimen. “But it pretty much got to a point where advanced surgery, or you know, a transplant was going to be needed,” he said.

“I waited a couple of weeks and that’s about when I received my gift.” He recalled the moment by saying he “prayed that night to God and just kind of asked, ‘Prepare me for whatever this is going to look like, that way, I can kind of psychologically get prepared.’ And then that same night, I fell asleep so hard, which you never do in a hospital. I was awakened by my nurses, and they told me that my gift of life was ready.

“It’s kind of hard to talk about, but pretty much that same night was when I got my answer and received my gift thanks to my donor and his family, and it’s been good.”

Thankful to Donors

Kevin Calhoun sincerely appreciates donor heroes and their families.

“I think the focus needs to be on donor families because of what they’ve gone through to lose someone very valuable and important in their life, for someone else to be given a chance, to keep carrying on.”

He has had some correspondence with the donor family but is sensitive to speaking about the donor hero and their family out of respect.

From what he’s learned about his donor hero, the family has “painted a really nice picture of what he was like. And he was a really stellar, independent human being and what he was doing with his life is fantastic. It’s just a shame that it got taken so shortly, which makes it kind of hard to receive the gift, but at the same time…thank you.”

Together, the Calhouns are volunteer Ambassadors who represent Midwest Transplant Network by sharing information and enhancing awareness of what it means to be a registered organ, eye and tissue donors.

Father’s Day Fun

The Calhouns will celebrate Father’s Day weekend with family.

“We have a big family reunion with a lot of family from out of town. There will be a lot of fathers hanging out. Kaci, Kyle and I will probably go to the park after church on Sunday to take Kyle fishing. He’s really been getting into it.”

Scot Pollard at the hospital standing with a walker

Scot Pollard’s Transplant Journey: A Big Heart for a Big Legend

April 11, 2024/in

Blog,
News

/by Midwest Transplant Network

A tall man in a hospital room, wearing a hospital gown and standing with a walker.

Scot Pollard stands with a walker in a hospital room during his care as he underwent a heart transplant. Photo provided by the Pollard family.

At 6’11”, Scot Pollard’s size has often been credited as a gift, propelling him into an 11-year NBA career following his legendary time with the Kansas Jayhawks men’s basketball team, during which he helped Kansas reach the NCAA Sweet 16 four seasons in a row.

In 2021, Pollard’s heart health began to rapidly decline due to a hereditary condition exacerbated by a contracted virus. It eventually became apparent that most medical solutions would not be enough. He needed a new heart, and more than that, he needed a really big one.

The respective body size of an organ donor and a registered transplant candidate are factors in determining whether a successful transplant is possible – especially for a heart. In the case of someone as large as Pollard, the odds of finding a match are lower.

“It’s not like being tall is a curse. It’s not. It’s still a blessing. But, I have known my entire life that there’s a good chance I wasn’t going to get old,” said Pollard in an interview with the Associated Press. “And so it gives you a different perspective on how you live your life and how you treat people and all that kind of stuff.”

Pollard and his wife, Dawn, revealed his condition on social media in January. They went on to post updates and participate in news interviews to share his progress, which in turn raised national awareness for the complexities surrounding organ transplantation and the importance of organ donation.

He underwent a successful heart transplant surgery on Feb. 16, after which he “immediately felt better.” Just 13 days later, he strutted out of the hospital to a chorus of applause.

Through this journey, Pollard has learned about the lifesaving gift of organ donation, and even hopes to one day connect with the family of his donor hero. “I would love to show them this heart isn’t going to waste.” Every donor hero can save up to eight lives, and Pollard hopes that by educating his friends, neighbors and fans, he can contribute to this life-saving work. “I’m going to annoy people with becoming a donor. That’s going to be a project for the rest of my life,” he said.

In honor of National Donate Life Month, Midwest Transplant Network is proud to recognize Scot Pollard as a Green Ribbon Champion for his openness about his transplant journey and advocacy for organ donation. Green Ribbon Champions are individuals who are passionate about increasing the number of registered organ donors in their communities, understanding that a simple “yes” can help give hope and share life to the thousands in need of life-saving organ transplants.

Midwest Transplant Network invites you to consider joining your state’s organ donor registry and encourage others to do the same. Learn more about the types of donation, including the option to be a living donor, and the incredibly positive emotional experiences of organ donor families and transplant recipients.

Join the organ, eye and tissue donor registry in Kansas and Missouri at ShareLifeMidwest.com or join the national donor registry at RegisterMe.org.

MTN Spotlight – Barb Sheble, Ambassador

August 30, 2023/in

Blog

/by Midwest Transplant Network

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

MTN Spotlight…Barb Sheble

In college, Barb Sheble passed out during track practice. A few months later, she got sick and passed out again. She was diagnosed with a congenital heart condition. That was in 1991.

In the mid- ‘90s, doctors said a transplant would be in her future.

“In the ’90s, you didn’t hear as much about organ donation,” said Sheble. “My only knowledge about organ donation was that a friend’s brother signed up to be a donor on his license. He died in a car accident and his organs were donated.”

Sheble said she “lived with the condition for 18 years” before being placed on the transplant waitlist in January 2009. She received a heart the same year.

Sheble, whose heritage is Citizen Potawatomi Nation, is an MTN Ambassador who’s volunteered since 2013. As a kid, she wanted to be a marine biologist; as an adult, she’s a medical lab scientist. The favorite songs on her playlist are “too many to count” because music is her peace and solace; she loves to rest and relax in the mountains, and when it comes to roller coasters or Ferris wheels, it’s “Roller coasters all day!”

What are three ways that being a transplant recipient has changed your life besides giving you another chance?
It has given me friends that I would have never met, and now I couldn’t imagine life without them. It has helped me see life on a broader scale — that the little troubles are just bumps in the road on this journey we call life.

It has taught me that we have to live each day with a purpose and to cherish what we have. Our family, friends and our experiences with those around us are more important than any of the tangible things we think we need.

Did you have any concerns or hesitancy about being a transplant recipient? If so, what were they?
Honestly, not really. I’d been through so much over the previous 18 years that to me, it was just the next thing I needed to do to keep moving forward on my journey.

How does your Native American heritage influence your conversations about organ donation?
I’m not sure I can say it is necessarily due to my heritage, but I just always want to be an advocate. I want people to know that donation works, so I talk about it as much as I can! I am proud to be Native American, and I am proud to be a recipient. My tribal ancestors were very strong-willed people, so I feel my Native American heritage has prepared me to be successful on my transplant journey.

In what ways do you advocate for organ donation?
Any way I can! I donate time when I can. I talk about it any chance I can, and I try every day to show that through transplant, you can live a full life. You can work, travel, exercise, go on hikes…you name it. I want people to see that if there is a will, you can make your ideals for your life happen. It’s all in the attitude!

Tell us about the Transplant Games. What have you experienced?

AMAZING! That one word sums up the games. Do they always run smoothly? No. But do I ever regret going? NEVER. The games and the people I know from them are what I look forward to all year long. You will always find inspiration at the games! From meeting donor families to meeting other recipients, the competition and the sportsmanship is literally the best thing!

Sheble has participated in the Transplant Games of America and World Transplant Games since 2012 in events that include shot put; discus and the ball throw; javelin; Pétanque doubles; volleyball and pickleball doubles. She’s been to Transplant Games of America in Grand Rapids, Michigan; Houston; Cleveland; Salt Lake City and San Diego, and to World Transplant Games in South Africa, Argentina, Spain, United Kingdom and Australia.

Gary Dixon with Chris Hutson Jr.'s family

Making Sure “Little Chris” Is Never Forgotten

February 26, 2021/in

/by Gary Dixon

Heart recipient and MTN Ambassador Gary Dixon (center) with donor Chris Hutson Jr.’s family

My name is Gary Dixon. I am here today because of the generosity and gift of a stranger who I now know as Chris Hutson Jr.

In 1999, I was diagnosed with cardiomyopathy, which is a technical term for an enlarged heart muscle. With meds and doctor visits, life continued until 2009, when I had a defibrillator installed to restart my heart if needed, and life went on.

In January 2017 my condition worsened to the point that a heart transplant was my only option. I never realized how sick I was, but luckily Dr. Kao, my cardiologist, did. On Feb. 1, 2017, I was put on the heart transplant list, and my wait began.

On April 21, 2017, I went for what started as a routine office visit that included an exciting wheelchair ride to the emergency room. I was admitted to Saint Luke’s Mid America Heart Institute and told I would be there until I received a heart transplant or became an organ donor.

My stay, which was about 5 1/2 weeks, had many new experiences — some better than others — and early on, the mantra of “one day closer” started to change my attitude and approach to life, and I still use it today. It also has a special meaning to Tesha, the mother of my donor, “Little Chris.”

On May 28, 2017, I got my gift. I was quickly better, not only physically, but also mentally and emotionally. My family will tell you I was a different person. Little Chris was truly changing and improving my life.

I started writing my donor family right after I left the hospital. I had to thank them for my gift and let them know how it had changed my life, but it was bittersweet because I was celebrating, and they were grieving.

In June 2018, I met my donor family, and since then, I have been blessed to get to know what a caring young man my donor — my constant companion, my buddy, Little Chris — is and the loving, sharing family he comes from. We have continued to get to know each other and share stories and memories, and our families are coming together and supporting each other as our journey through life continues.

I will continue to honor my gift and tell anyone who will listen what a great young man Little Chris is and make sure he is never forgotten.

I would like to share one last thought. Every decision you make is like throwing a stone into the water; it has a ripple effect. On Feb. 1, 2017, Chris Hutson Jr. (“Little Chris”) made a decision and signed his driver’s license to become an organ donor. I am part of Chris Hutson Jr.’s ripple effect.

I appreciate you allowing me to share my story and tell you how organ donation has changed my life.

Our thanks to Gary Dixon for writing this guest blog post.

“Honoring My Donor the Best I Can”

February 11, 2021/in

/by Barb Sheble

Heart recipient and MTN Ambassador Barb Sheble

After passing out at track practice in January of my freshman year of college, I was sent to two different cardiologists for tests, and since neither could see anything wrong with me, I was cleared to return to practice and was able to finish out the year. About two weeks after the end of the outdoor track season, in mid-May of 1991, I started feeling like I did in January, so my parents took me to the emergency department at a local hospital. While answering the general check-in questions, I passed out, and once back in an exam room, I was found to have a serious heart arrhythmia called ventricular tachycardia (VT). My heart was going way too fast and was in the wrong rhythm.

This hospital did not specialize in these types of cases so, once stabilized, I was transferred to another, more specialized hospital in town, where I was diagnosed with a rare congenital heart condition called arrhythmogenic right ventricular dysplasia (ARVD). This condition not only causes VT, but it also causes fatty, fibrous tissue to build up on the right ventricle.

Over the next 18 years, with the help of an amazing cardiologist, I was able to live a really good life overall, despite having to manage my condition. I was able to finish college with two bachelor’s degrees, be successful working full time as a Medical Lab Scientist, travel and enjoy life with my family and friends! Sure, there were procedures that I had to go through from time to time, like getting an implantable defibrillator in 1995 and a few replacements over the years. And there were times spent in the hospital, but I always tried to just do my best to make each day fun regardless of where I was and what I was doing!

On July 2, 2008, things started to take a turn for the worse. I can still remember like it was yesterday exactly where I was when it seems like a switch was flipped. Beginning on that summer day, I was either in the doctor’s office or in the hospital at least once a week, every week until a night in mid-November when everything came to a head. That night I began having VT that my defibrillator could not pace me out of, so it had to shock me instead. In total, I was shocked seven times before we could get to the hospital and get an IV medicine that would control my heart. The next day I had the last of my many ablation procedures that are used to help eliminate the areas that cause the heart to go into the wrong rhythm. That was also the day that we decided it was finally time to be evaluated for a heart transplant. Honestly, it was not a surprise when my doctor brought it up; I had known for years that transplant was going to be my last-ditch treatment option, and after how things had gone since July, I kind of figured we were working our way there.

In early December 2008, I was evaluated for transplant, and it was determined that I was indeed to that point. On Jan. 6, 2009, I was placed on the transplant list. Over the next seven months and 12 days, I continued to work and do my best to enjoy life. At first, I was still full time but over time had to reduce my hours, and by summer I was down to four hours day. By July 2009, I ended up needing to go on IV medication 24 hours a day, but I was lucky enough to be able to do this at home and still go to work. That was a true blessing, as many people need to wait in the hospital for a while before their transplant!

On Aug. 18, 2009, early in the morning, THE CALL finally came. They had a heart for me! This was an especially amazing day to get the greatest gift that anyone can give, because that day is also my mom’s birthday! It is so special to be able to share that day with her each year, and I cannot thank my donor and their family enough.

Recovery had its little hiccups and took a little longer than some. We also learned that my heart was actually much worse than any of us knew. It was the size of an NFL football and was black/dead on the inside.

Since being given this gift, I have tried to live life to its fullest, and I still always try to have fun and find the positive in each day. I continue to work full time in the lab, travel any chance I get, and spend time as much as I can with my family and friends. I get to be a part of big family moments like weddings, graduations and births. I have been able to get back into my throwing events in track and pick up a few other sports, while competing in the both the World Transplant Games and the Transplant Games of America.

I strive to honor my donor the best I can, and there is not a day that goes by that I don’t think of them and their family. While I have not been able to meet my donor’s family, and I know nothing about my hero, I know I would not be here today without their generosity! A fellow heart recipient once told me he feels as though every donor family is his donor family, and I couldn’t agree more! I have been fortunate enough to meet many other donor families who amaze me, and I am blessed to call some of them my adopted donor families!

Over the years, things have not always been easy, but that does not mean that my life has not been a blessing! As I look back, I sometimes think, “Yeah, that wasn’t the best day” or, “Well, yeah, I could have done without going through that,” but that doesn’t mean that I would want to change things. This journey has made me who I am. It has brought so many wonderful people into my life whom I honestly can’t imagine my life without! It has taught me that I am strong and that with the right people and support system, I can get through anything!

When I first got sick, I didn’t think I would make it to 40, and here I am rocketing toward 50 in fewer than two years! In May, I will celebrate the fact that it has been 30 years since I nearly died. In August, thanks to God, my donor, their family and my amazing medical team, we will celebrate my 12th heart birthday. I think it is safe to say, life doesn’t get any better than that!

Our thanks to Barb Sheble for writing this guest blog post.