recipient – Midwest Transplant Network

MTN Spotlight – Kevin Calhoun, Recipient

June 13, 2024/in Blog/by Mitch Weber

Celebrating Father’s Day: “A heart transplant allowed us to have our son.”

A heart transplant, an athletic competition, and a chance encounter that led to love are the elements of a great adventure, a life’s story, and a reason to celebrate Father’s Day.

In 2017, Kevin Calhoun traveled to Spain for the World Transplant Games. He’d had a heart transplant a few years earlier and was ready to compete in soccer and pétanque.

That same year, Kaci Keller was invited by a friend to support her at the World Transplant Games. Her friend asked “Do you want to travel with me? I want to go to Spain. I want to compete.”

Kaci said, “Yes, let’s go.”

Kevin lived in Kansas City and Kaci lived in Florida. They didn’t know each other but met at Team USA gatherings at the World Transplant Games, started talking and “kind of hit it off.” At the end of the week, it was time to go back home. Kaci shared part of a conversation with Kevin. “He said, ‘I didn’t come here looking for someone, but I like you. Can I call you when we get back to the states?’” They kept in touch with each other and within a year, they were engaged.

Now they have a family, and their son, Kyle, is 4.

“It’s such a blessing and we would not be here if it was not for the heart transplant that Kevin had and truly received the gift of life,” said Kaci.

“Kevin gets to celebrate Father’s Day because his heart transplant allowed us to have our son.”

“It’s the most fantastic thing in the world,” said Kevin. “Every day, I’m just amazed at our son’s smartness, creativity and his ability. I have my wife to thank, I have the Lord to thank, and my donor to thank. It sounds cliché but I until you’re a father, you really don’t know what it’s like.”

Kevin’s Heart Transplant Journey

In 2008, Kevin was diagnosed with cardiomyopathy – a disease of the heart muscle that causes the heart to have a harder time pumping blood to the rest of the body, which could lead to symptoms of heart failure.

For about eight years, he lived with the condition with medications, diet and a careful regimen. “But it pretty much got to a point where advanced surgery, or you know, a transplant was going to be needed,” he said.

“I waited a couple of weeks and that’s about when I received my gift.” He recalled the moment by saying he “prayed that night to God and just kind of asked, ‘Prepare me for whatever this is going to look like, that way, I can kind of psychologically get prepared.’ And then that same night, I fell asleep so hard, which you never do in a hospital. I was awakened by my nurses, and they told me that my gift of life was ready.

“It’s kind of hard to talk about, but pretty much that same night was when I got my answer and received my gift thanks to my donor and his family, and it’s been good.”

Thankful to Donors

Kevin Calhoun sincerely appreciates donor heroes and their families.

“I think the focus needs to be on donor families because of what they’ve gone through to lose someone very valuable and important in their life, for someone else to be given a chance, to keep carrying on.”

He has had some correspondence with the donor family but is sensitive to speaking about the donor hero and their family out of respect.

From what he’s learned about his donor hero, the family has “painted a really nice picture of what he was like. And he was a really stellar, independent human being and what he was doing with his life is fantastic. It’s just a shame that it got taken so shortly, which makes it kind of hard to receive the gift, but at the same time…thank you.”

Together, the Calhouns are volunteer Ambassadors who represent Midwest Transplant Network by sharing information and enhancing awareness of what it means to be a registered organ, eye and tissue donors.

Father’s Day Fun

The Calhouns will celebrate Father’s Day weekend with family.

“We have a big family reunion with a lot of family from out of town. There will be a lot of fathers hanging out. Kaci, Kyle and I will probably go to the park after church on Sunday to take Kyle fishing. He’s really been getting into it.”

Getting Their Flowers: MTN Staff Earn a DAISY Team Award

May 13, 2024/in Blog, Community Partners, Events, News/by Nez Savala

The excitement in “We won a DAISY with WMC!!!!” says a lot.

The story behind the sentiment says even more.

In December 2023, a car accident sent Dwayne ‘D Dub’ Moenning to the emergency department at Wesley Healthcare in Wichita, Kansas. He was cared for by a Surgical Intensive Care Unit for about a week, but despite efforts to save him, he passed away. Moenning’s family chose to donate their son’s organs. And they wanted his classmates to attend his honor walk. The school is more than an hour’s drive to the hospital.

MTN’s Impact
Midwest Transplant Network staff Midge Dempsey, Family Services Coordinator II, and Nikki Dixon, Hospital Services Coordinator II, work in the Wichita satellite office. They served on the team that supported the Moenning family, and both made an impact.

Dempsey describes her job as supporting families “during one of the worst days of their lives by giving them hope and to allow them to experience joy amidst their pain.”

Dempsey explained that when the time came to approach the Moenning family about donation, they struggled with the decision, but after conversation and explaining the organ donation process, they “eventually verbalized how important it was for D Dub to save lives.” Soon, Dempsey was helping the family plan an honor walk and coordinating efforts to bring classmates and community members from their small town to the hospital.

“They were finding comfort in donation and how D Dub would be honored.”

Earning The DAISY Team Award
The DAISY Team Award is designed to honor collaboration by two or more people, led by a nurse, who identify and meet patient and patient family needs by going above and beyond the traditional role of nursing.

Wesley Healthcare presented The DAISY Team Award to a multi-disciplinary SICU team that included partners and others who had an instrumental role in the Moenning’s story. The ceremony was held May 8, in the heart of National Nurses Week.

“Earning a DAISY Team Award brings validation to my life and reminds me that I am following the path that has been paved for me. This award brings me joy because I know that I was able to provide someone with something they needed at a given time,” said Dempsey.

As a Hospital Services Coordinator, Dixon is responsible for “education, onboarding, policy development and problem-solving. Most importantly, I teach hospital staff when to refer patients to MTN and help facilitate the relationship between the hospital and Midwest Transplant Network.”

Dixon’s thoughts about the honor are similar. “Earning The DAISY Team Award as part of a hospital/MTN team is a blessing. We work very closely with the hospital team and winning an award together is a testament to that partnership.”

There’s another layer to the award for Dixon. “I spent my bedside nursing career in the Cardiac Intensive Care Unit at Wesley, so this hospital is dear to my heart. I am very proud to serve Wesley as their MTN Hospital Services Coordinator. Organ donation saved my late father’s life twice, so I am honored to be part of this mission.”

About The DAISY Award
The DAISY Award was established by the family of J. Patrick Barnes in honor of the care he received after being diagnosed with an autoimmune disease at the age of 33, in 1999. While he was hospitalized, his family “experienced the best of nursing.”

After Barnes died, his wife created the acronym DAISY – Diseases Attacking the Immune System – and the family created a not-for-profit organization, and The DAISY Award for Extraordinary Nurses began at the Seattle Cancer Care Alliance at the University of Washington Medical Center. The DAISY Award is described as “the first program of its kind to give patients, families, and co-workers a way to express their gratitude to nurses for what they became nurses to do – provide compassionate care to patients and their families.”

The DAISY Award has become a strategic tool for nurse recruitment, retention and resilience that has been adopted by healthcare organizations and schools of nursing in the U.S. and around the world. Learn more about the program from The DAISY Foundation.

Two ladies holding certificates in front of a star-themed background.

Midge Dempsey and Nikki Dixon, Midwest Transplant Network, pose with The DAISY Team Award certificates they received at a ceremony at Wesley Medical Center in Wichita, Kansas.

Four ladies posing for a picture in front of a star-themed background.

Midge Dempsey, Jennifer Scheuber, Amy Keith, Wesley Medical Center, and Nikki Dixon are all smiles at The DAISY Awards celebration.

Wesley Healthcare recognized its Surgical Intensive Care Unit with The DAISY Team Award at a ceremony during National Nurses Week.

Midwest Transplant Network Presents Annual Awards for Organ, Eye and Tissue Donation Excellence

April 25, 2024/in Blog, Community Partners, Events, News/by Nez Savala

Midwest Transplant Network staff members recognize their partners in saving lives through organ, eye and tissue donation by presenting the annual Excellence in Donation Awards to hospitals, individuals and organizations in our community.

Based on 2023 donation outcomes, Midwest Transplant Network presents the Excellence in Organ and Tissue Donation Awards to hospitals that had a higher-than-average number of families granting authorization for donation. The organization also gives these awards to exceptional partners in hospitals; licensing, treasury and Department of Revenue offices; medical examiner officers; funeral homes and beyond. These individuals made an extraordinary contribution to Midwest Transplant Network’s lifesaving mission.

Butterflies and Organ Donation

The butterfly holds deep symbolism in organ, eye and tissue donation. The butterfly is associated with hope, renewal and transformation; just as a caterpillar undergoes metamorphosis to become a butterfly, organ donation represents a transformative process for donor families and transplant recipients – the gift of life that brings hope to those in need.

Award honorees received a beautiful, pressed flower butterfly print by artist Ashley Foster. She believes that flowers symbolize joy, love and gratitude.

2024 Excellence in Donation Honorees

Midwest Transplant Network collaborates with 250 hospitals and recognized the following:

Organ and tissue excellence: Overland Park Regional Medical Center, Freeman Health System, Hays Medical Center, Lee’s Summit Medical Center, Saint Luke’s East Hospital, Capital Region Medical Center, Hutchinson Regional Medical Center.

Organ excellence: AdventHealth South Overland Park, Mercy Hospital Joplin, Centerpoint Medical Center, Stormont Vail Health Care, The University of Kansas Health System, Olathe Medical Center, Liberty Hospital, Saint Luke’s North Hospital.

Tissue excellence: Mosaic Life Care, AdventHealth Shawnee Mission, Salina Regional Health Center, The University of Kansas Health System St. Francis Campus, Kansas Medical Center, Nevada Regional Medical Center.

In addition to hospitals, Midwest Transplant Network collaborates with countless individuals and teams and recognized the following:

Individual and group honorees: Olivia Zhang, CST, University of Missouri Health Care; Amy Keith, BSN, Wesley Medical Center; Crystal Vail, RN, BSN, Freeman; Ciara Wright, Ph.D, The University of Kansas Health System; Johnson County Medical Examiner’s Office; Deborah Washam, RN, MS, Greater Kansas City Black Nurses Association; Anthony Harrington, MD, Blue Sky Neurology, Research Medical Center; Naftali Presser, MD, Research Medical Center; Bhargava Mullapudi, MD, Children’s Mercy Kansas City; Andrew Widman, volunteer Ambassador.

About Midwest Transplant Network

Midwest Transplant Network has been connecting lives through organ donation since 1973. As the federally designated not-for-profit organ procurement organization (OPO) for Kansas and the western two-thirds of Missouri, Midwest Transplant Network provides services including organ procurement; surgical tissue and eye recovery; laboratory testing; and 24-hour rapid response for referrals from hospital partners. Midwest Transplant Network ranks in the top 10% in the country among OPOs, which reflects the organization’s quality, professionalism and excellence in partnerships throughout the region. For more information, visit mwtn.org.

A butterfly made of pressed flowers in a photo frame.

A pressed flower butterfly print given to award honorees at MTN’s Excellence in Donation ceremony.

Guests seated at a table at an awards celebration.

Guests at MTN’s annual Excellence in Donation Awards ceremony smile for a photo.

Andrew Widman, MTN Ambassador, speaking at the podium at MTN’s Excellence in Donation Awards ceremony.

Excellence in Donation Awards ceremony guests participating in a bubble remembrance.

Scot Pollard’s Transplant Journey: A Big Heart for a Big Legend

April 11, 2024/in Blog, News/by Midwest Transplant Network

A tall man in a hospital room, wearing a hospital gown and standing with a walker.

Scot Pollard stands with a walker in a hospital room during his care as he underwent a heart transplant. Photo provided by the Pollard family.

At 6’11”, Scot Pollard’s size has often been credited as a gift, propelling him into an 11-year NBA career following his legendary time with the Kansas Jayhawks men’s basketball team, during which he helped Kansas reach the NCAA Sweet 16 four seasons in a row.

In 2021, Pollard’s heart health began to rapidly decline due to a hereditary condition exacerbated by a contracted virus. It eventually became apparent that most medical solutions would not be enough. He needed a new heart, and more than that, he needed a really big one.

The respective body size of an organ donor and a registered transplant candidate are factors in determining whether a successful transplant is possible – especially for a heart. In the case of someone as large as Pollard, the odds of finding a match are lower.

“It’s not like being tall is a curse. It’s not. It’s still a blessing. But, I have known my entire life that there’s a good chance I wasn’t going to get old,” said Pollard in an interview with the Associated Press. “And so it gives you a different perspective on how you live your life and how you treat people and all that kind of stuff.”

Pollard and his wife, Dawn, revealed his condition on social media in January. They went on to post updates and participate in news interviews to share his progress, which in turn raised national awareness for the complexities surrounding organ transplantation and the importance of organ donation.

He underwent a successful heart transplant surgery on Feb. 16, after which he “immediately felt better.” Just 13 days later, he strutted out of the hospital to a chorus of applause.

Through this journey, Pollard has learned about the lifesaving gift of organ donation, and even hopes to one day connect with the family of his donor hero. “I would love to show them this heart isn’t going to waste.” Every donor hero can save up to eight lives, and Pollard hopes that by educating his friends, neighbors and fans, he can contribute to this life-saving work. “I’m going to annoy people with becoming a donor. That’s going to be a project for the rest of my life,” he said.

In honor of National Donate Life Month, Midwest Transplant Network is proud to recognize Scot Pollard as a Green Ribbon Champion for his openness about his transplant journey and advocacy for organ donation. Green Ribbon Champions are individuals who are passionate about increasing the number of registered organ donors in their communities, understanding that a simple “yes” can help give hope and share life to the thousands in need of life-saving organ transplants.

Midwest Transplant Network invites you to consider joining your state’s organ donor registry and encourage others to do the same. Learn more about the types of donation, including the option to be a living donor, and the incredibly positive emotional experiences of organ donor families and transplant recipients.

Join the organ, eye and tissue donor registry in Kansas and Missouri at ShareLifeMidwest.com or join the national donor registry at RegisterMe.org.

Partner Spotlight — Lisa Miller, Jackson County, Kansas, Treasurer’s Office

November 21, 2023/in Blog, Community Partners/by Midwest Transplant Network

Midwest Transplant Network partners with licensing, treasury and Department of Revenue offices in Kansas and western Missouri to grow the organ, eye and tissue donor registry. We spoke with Lisa Miller, Deputy Treasurer of the Jackson County, Kansas, Treasurer’s Office about why donation is so important to her.

Jackson County, Kansas, Deputy Treasurer Lisa Miller

How does your specific office help inform and educate patrons on the importance of joining the donor registry?

We display all of the items that are provided by MTN and also participate in the promotions for National Donate Life Month and National DMV Appreciation Month with a display in our office.

We have in the past had our pictures of our displays in the local newspaper.

Why do you feel your office’s efforts to promote the need for organ, eye and tissue donors are so important?

Our office has a personal connection to organ donation. We have two employees with relatives who are recipients of organ donation and one employee who is a living donor.

Tell us about your connection to organ, eye and tissue donation.

In April 2004, my husband became ill and ended up in the hospital with an infection. After many doctor’s appointments and several years later, he ended up in the hospital and was diagnosed with cardiomyopathy. Our belief is that the infection had attacked his heart. His cardiologist referred us to the Saint Luke’s transplant program. After spending the first half of 2014 in and out of the hospital, he was finally added to the transplant waitlist in July. He entered the hospital in October and received his heart in December. Since, he has been able to see two of his children get married and is enjoying his four grandchildren and hunting with his sons.

What is the biggest misconception you hear about donation in your personal and/or professional life?

That the medical professionals will not provide the care needed to save a life if they know that the individual is a donor.

If there is one thing you would want to share with others about the importance of joining the donor registry, what would it be?

It truly is a gift of life.

Breast Reconstruction Awareness Story: Dawn Romano

October 18, 2023/in Blog, Employee Spotlight/by Midwest Transplant Network

Dawn Romano, LCSW, LSCSW, MTN Family Services Coordinator III, opened up about her breast reconstruction experience for Breast Reconstruction Awareness (BRA) Day.

Dawn Romano, MTN staff member and breast cancer survivor

Dawn Romano is a clinical social worker who works in organ and tissue donation as a Family Services Coordinator for Midwest Transplant Network. In April 2008, Dawn’s life changed when she was diagnosed with an early stage of breast cancer. After undergoing a lumpectomy and 33 rounds of radiation, Dawn believed she was cancer-free and continued on with her life.

Things changed in the summer 2015 when Dawn felt a lump on her breast. Later, while getting a mammogram and biopsies, doctors confirmed that they had found two tumors. The cancer had returned, this time more aggressive. “Tears streamed from my eyes,” she recalled. “Reality had slapped me in the face.”

Through four grueling months of chemotherapy treatment, hair loss and discouragement, Dawn found strength from her faith, friends and family to continue working in organ and tissue donation. After undergoing a double mastectomy, Dawn and her surgeon discussed the possibility of breast reconstruction. “Thankfully, from my work at Midwest Transplant Network, I knew enough to ask my surgeon whether they would use any human tissue during my surgery. He told me yes,” she shared.

Thanks to the gift of skin from two donor heroes, Dawn finally began to heal. Her experience has also helped her develop a deeper appreciation of her work, especially donor families. “We often hear that tissue donation is life-enhancing, but for many of us, it has saved our lives in many ways,” Dawn shared. “This gift has made a huge impact on my life. To all donor families, please accept my deepest and most sincere thank you. You and your loved ones have made a difference in so many people’s lives. And for that, they will always be remembered by people like me.”

Story courtesy of MTF Biologics

Breast Reconstruction Awareness Story: Lisa Cummins

October 18, 2023/in Blog, Employee Spotlight/by Midwest Transplant Network

In honor of Breast Reconstruction Awareness (BRA) Day, MTN Quality Assurance Coordinator II Lisa Cummins, ASQ-CQIA, spoke about her journey with breast reconstruction.

Lisa Cummins, MTN staff member and breast cancer survivor

For over 40 years, Lisa Cummins has worked in organ and tissue donation at Midwest Transplant Network. Her story begins in 2001, when she was first diagnosed with a rare type of cancer found in her uterus. Following a hysterectomy and five rounds of chemo, Lisa celebrated being cancer-free, but not for long.

“I had just hit my five-year mark when they found my first breast cancer,” she recalled. Diagnosed with an early stage of DCIS, or ductal carcinoma in situ, Lisa again underwent intense radiation treatment and another major surgery — this time using donated tissue. For the second time, Lisa believed she was cancer-free before receiving terrible news.

“At my five-year anniversary appointment — the golden mark where cancer patients can consider themselves true survivors — they found my second breast cancer,” she shared. Doctors confirmed that the cancer had returned in the same breast, this time more aggressive. Surgeons presented Lisa with the option of a mastectomy — a decision she would take one step further. “I decided that I did not want to go through it all over again, so I opted to have a double mastectomy,” she explained. Afterwards, Lisa underwent breast reconstruction, becoming a tissue recipient for the second time.

Today, Lisa celebrates being 11, 16 and 21 years cancer-free! Thanks to the gift from her donor, she returns to helping others in organ and tissue donation with a deeper appreciation for her life and work. She even uses her story at local hospitals, video conferences and live events to aid others through their breast cancer journeys and share the positive impact of donation. “There is not a day that goes by that I do not think of my donor families and am thankful for their selfless act of donation,” Lisa said, smiling. “I do not know who they are, so at every chance I get, I tell donor families ‘THANK YOU!’ Without their gift of life, I wouldn’t have been able to have reconstructive surgery. I can now say I am a survivor!”

Story courtesy of MTF Biologics

Partner Spotlight — Linda Gerhardt, Jackson County, Kansas, Treasurer’s Office

September 28, 2023/in Blog, Community Partners, Guest Author/by Linda Gerhardt

As National DMV Appreciation Month comes to a close, Jackson County, Kansas, Treasurer Linda Gerhardt told us why organ, eye and tissue donation is personal to her.

Living donor and Jackson County, Kansas, Treasurer Linda Gerhardt

Mine is the story of a living kidney donor. My niece was diagnosed with diabetes when she was in high school. Her mother was diabetic, so she had inherited it. A few years after my niece got out of high school, she was continually sick and in and out of the hospital. She was on dialysis, and she did the dialysis at home at night and went to work during the day. She was a very hardworking, self-supporting young woman. The day came that she was told she needed a kidney transplant. She was put on the transplant waitlist and was told that could take quite a while.

As time went on, my niece became sicker; she was in and out of the hospital, and we worried she might not receive a kidney in time. One day I was at my mother’s, and she said to me, “If something were to happen to me, could Melody get one of my kidneys?” It suddenly opened my eyes. I told my sister of the conversation, and she said that she herself had asked the doctor about donating, and they had told her no because of a medical condition. I had never even given it a thought as a possibility. I was 39 years old and married with two boys. We were her dad’s sisters, so there was a chance we could match. Her parents were both deceased, and none of her brothers or sisters matched or for health reasons couldn’t donate. I suddenly realized this was something I could do.

I then started the process. I was an 80% match to Melody, and they told me that her dad and I probably would have been a perfect match. I had never been a person to go to the doctor unless I had to (kind of like not wanting to go to the dentist), but at the point of finding out I could help her, it was like God was leading my way. I had to monitor my blood pressure; I would go to the health department so they could record it for me. It would be high, and the nurse would say, “Let’s just visit for a while,” and then it would be fine. I passed all the tests.

We checked in at The University of Kansas Medical Center to do the surgery, and preliminary tests showed my niece had an infection, so it was put off for a month. The next time, we were good to go. My priest at church had announced to the congregation to pray for me and gave me a special blessing. It was all like it was meant to be.

On June 25, 2023, we marked 25 years since the transplant. I received the prettiest bouquet of flowers from her. Being an organ donor was never something I had considered, but knowing I could possibly save her life was such a good feeling. I never saw a bill for anything; it all went through my niece’s insurance.

When I was an organ donor, I did not work in the treasurer’s/driver’s license office. Now, I do, and I am honored to help inform people about and promote organ donation. It is amazing how surrounded we have been by organ donation in the courthouse. We’ve had a coworker’s husband receive a heart transplant and a coworker’s brother receive a kidney/pancreas transplant. And in the Register of Deeds office, a worker’s granddaughter received a lung transplant. On the third floor of the courthouse, a judge received a heart transplant, and a past employee’s husband received a kidney from his daughter. In some of these cases, I’m pretty sure they wouldn’t be here today if not for others’ generous donations.

We always participate in whatever we can to promote organ donation at our office. No one knows when they might be the next one to have a loved one suffering from an illness they never expected, whose life depends on your decision or someone else’s. If you have ever been faced with someone you know needing an organ transplant, you would know how important it is to be on the donor registry. Please think about organ donation.

Our thanks to Linda Gerhardt for writing this guest blog post.

Partner Spotlight — Stefanie Dotson, Maryville Licensing Bureau

September 20, 2023/in Blog, Community Partners/by Midwest Transplant Network

In honor of National DMV Appreciation Month, we asked Assistant Manager Stefanie Dotson of the Maryville (Missouri) Licensing Bureau about her important role in the donation process. She also shared her personal ties to organ, eye and tissue donation in this Q&A.

Stefanie Dotson with her nephew, donor hero Aiden Jones

Maryville Licensing Bureau Assistant Manager Stefanie Dotson (left) with her nephew, donor hero Aiden

Q: Tell us a bit about the role the DMV plays in organ, eye and tissue donation.

A: As a DMV worker, any time I issue a permit or driver’s license, we ask if they would like to be an organ, eye and tissue donor. I have found that many people are unaware of the program and have no knowledge of the benefits. At that time, I am able to inform them with the facts and use my personal experiences so they can make the right decision for them.

Q: Tell us about your connection to organ, eye and/or tissue donation.

A: I have several connections to the organ, eye and tissue donation program. I have a friend who has received two kidneys, and I’m happy to report she’s doing great. My mother-in-law had three kinds of cancer, and my husband was still able to donate her corneas when she passed. The one most dear to my heart is my organ donor hero nephew. He was 16 years old when tragedy struck, and we found ourselves devastated by the news he would not be going home with us. I looked at my sister and said, “You know what the next question is, right?” She said, “No, what?” I said, “Do you want to donate his organs?” She took a bit to talk it over and decided she would. The honor walk was amazing. My sister has since received letters from some of the recipients, which have been amazing to read.

Q: How does your specific office help inform and educate patrons on the importance of joining the donor registry?

A: Our office always tries to find fun ways to open up the conversation about being a donor. We like to participate in any decorating contests that are available, we have different displays with facts about being a donor and we include the people we know are recipients or have become a donor hero in our display. Around the holidays, we decorate a tree with the donation colors and add bracelets for the public.

Q: Why do you feel your office’s efforts to promote the need for organ, eye and tissue donors are so important?

A: I feel it is important to inform people of the facts about being a donor. There are lots of misconceptions out there about the details that scare people away. When people are informed with facts, it’s easier for them to make the decision to be an organ donor.

Q: What is the biggest misconception you hear about donation that you hear in your personal and/or professional life?

A: The biggest misconception I hear is: “I was told I can’t donate my organs by this doctor because of this.”

My mother-in-law’s corneas were still used even though she had three different cancers.

Q: If there is one thing you’d want to share with others about the importance of joining the donor registry, what would it be?

A: I just would like people to realize how life-changing it is to be a recipient of an organ. Your loved one gets to live on and is celebrated by people you never knew existed because they are a part of your loved one, with them every day.

MTN Spotlight – Barb Sheble, Ambassador

August 30, 2023/in Blog/by Midwest Transplant Network

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

MTN Spotlight…Barb Sheble

In college, Barb Sheble passed out during track practice. A few months later, she got sick and passed out again. She was diagnosed with a congenital heart condition. That was in 1991.

In the mid- ‘90s, doctors said a transplant would be in her future.

“In the ’90s, you didn’t hear as much about organ donation,” said Sheble. “My only knowledge about organ donation was that a friend’s brother signed up to be a donor on his license. He died in a car accident and his organs were donated.”

Sheble said she “lived with the condition for 18 years” before being placed on the transplant waitlist in January 2009. She received a heart the same year.

Sheble, whose heritage is Citizen Potawatomi Nation, is an MTN Ambassador who’s volunteered since 2013. As a kid, she wanted to be a marine biologist; as an adult, she’s a medical lab scientist. The favorite songs on her playlist are “too many to count” because music is her peace and solace; she loves to rest and relax in the mountains, and when it comes to roller coasters or Ferris wheels, it’s “Roller coasters all day!”

What are three ways that being a transplant recipient has changed your life besides giving you another chance?
It has given me friends that I would have never met, and now I couldn’t imagine life without them. It has helped me see life on a broader scale — that the little troubles are just bumps in the road on this journey we call life.

It has taught me that we have to live each day with a purpose and to cherish what we have. Our family, friends and our experiences with those around us are more important than any of the tangible things we think we need.

Did you have any concerns or hesitancy about being a transplant recipient? If so, what were they?
Honestly, not really. I’d been through so much over the previous 18 years that to me, it was just the next thing I needed to do to keep moving forward on my journey.

How does your Native American heritage influence your conversations about organ donation?
I’m not sure I can say it is necessarily due to my heritage, but I just always want to be an advocate. I want people to know that donation works, so I talk about it as much as I can! I am proud to be Native American, and I am proud to be a recipient. My tribal ancestors were very strong-willed people, so I feel my Native American heritage has prepared me to be successful on my transplant journey.

In what ways do you advocate for organ donation?
Any way I can! I donate time when I can. I talk about it any chance I can, and I try every day to show that through transplant, you can live a full life. You can work, travel, exercise, go on hikes…you name it. I want people to see that if there is a will, you can make your ideals for your life happen. It’s all in the attitude!

Tell us about the Transplant Games. What have you experienced?

AMAZING! That one word sums up the games. Do they always run smoothly? No. But do I ever regret going? NEVER. The games and the people I know from them are what I look forward to all year long. You will always find inspiration at the games! From meeting donor families to meeting other recipients, the competition and the sportsmanship is literally the best thing!

Sheble has participated in the Transplant Games of America and World Transplant Games since 2012 in events that include shot put; discus and the ball throw; javelin; Pétanque doubles; volleyball and pickleball doubles. She’s been to Transplant Games of America in Grand Rapids, Michigan; Houston; Cleveland; Salt Lake City and San Diego, and to World Transplant Games in South Africa, Argentina, Spain, United Kingdom and Australia.

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