August 2023 – Midwest Transplant Network

Celebrating One Year of a World-Class Donor Care and Surgical Recovery Unit

August 31, 2023/in

News

One year ago — Sept. 1, 2022 — Midwest Transplant Network (MTN) opened its new Donor Care and Surgical Recovery Unit (DCU) after years of careful planning, preparation and training on the processes and technology associated with an in-house facility. Since then, with support from many hospital, professional and community partners, we have cared for 131 donor patients[1] from 29 area hospitals in our world-class DCU. These donor heroes provided 415 lifesaving organs to those who desperately waited for a second chance.

The DCU features a seven-bed onsite intensive care unit, two state-of-the-art operating rooms, a CT scanner with technology to conference remotely with physicians, a specialty laboratory and a family support lounge for donor heroes’ loved ones to gather if desired. Patients who meet certain clinical criteria may be eligible to move to the DCU, where MTN staff members continue administering high-level critical care until surgical teams begin organ recovery.

“It’s hard to believe we have already been providing expert care to donor heroes in our DCU for a year,” said Lori Markham, RN, MSN, CCRN-K, CPTC, MTN Vice President & Chief Clinical Officer. “We had a vision to create a specialized facility in-house for many years, and seeing it come to fruition has been so powerful. I am incredibly proud of our team for all their hard work, and I am grateful for all our partners that have come together to support this new process that allows for better outcomes.”

Since the DCU opened, MTN has enabled more organs per donor to be transplanted than before, with the average number of organs transplanted per donor increasing from 3.1 pre-DCU to 3.35 post-DCU opening among the same type of donor characteristics when recovered in donor hospitals.

“We anticipated that the DCU would allow a focus solely on the process of organ donation and ultimately create better outcomes for transplant recipients,” said Jan Finn, RN, MSN, MTN President & Chief Executive Officer. “It’s an honor to fulfill the mission of MTN in this incredibly important work and also recognize the need to continue innovating and improving to honor donor heroes and their families. We are proud to see our staff and facility working so well allowing us to extend the gift of life to even more recipients and provide hope for those awaiting a transplant.”

MTN staff members are highly trained in the complexity of caring for organ donor heroes in the DCU, which was designed specifically to maximize the gift of life; this can free up critical resources in area hospitals — such as intensive care unit beds and operating rooms — to serve other patients in need.

“My team has complete confidence in sending our patients to Midwest Transplant Network’s DCU,” said Carol Perry, Senior Vice President & Chief Nursing Officer, Stormont Vail Health; MTN Advisory Board. “The state-of-the-art facility allows MTN’s team of expertly trained staff members to provide specialized care for donors as their gifts are matched with recipients and throughout the organ, eye and tissue recovery process. Knowing our donor heroes are receiving high-quality care at the DCU allows us to dedicate resources to critically ill patients in our ICU.”

Out of 56 organ procurement organizations (OPOs) in the U.S., MTN is just the 12th organization with a donor care and recovery center that is not based in a hospital. Creating the DCU is one of many tactics MTN has taken to improve donation outcomes.

“It was hard to imagine the extent of possibilities and growth that would result from the opening of the DCU — and yet, as a team, we have successfully learned how to perform our own echocardiograms and liver biopsies, take X-rays and prepare our own slides for pathology, all while continuing to provide the best care possible to our donor heroes,” said Emily Freund, BSN, RN, CPTC, MTN Organ Procurement Coordinator III. “The DCU is proving to be key in our mission to increasing gifts transplanted.”

[1] All DCU data pulled from Sept. 1, 2022, through July 31, 2023.

MTN Spotlight – Barb Sheble, Ambassador

August 30, 2023/in

Blog

/by Midwest Transplant Network

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

MTN Spotlight…Barb Sheble

In college, Barb Sheble passed out during track practice. A few months later, she got sick and passed out again. She was diagnosed with a congenital heart condition. That was in 1991.

In the mid- ‘90s, doctors said a transplant would be in her future.

“In the ’90s, you didn’t hear as much about organ donation,” said Sheble. “My only knowledge about organ donation was that a friend’s brother signed up to be a donor on his license. He died in a car accident and his organs were donated.”

Sheble said she “lived with the condition for 18 years” before being placed on the transplant waitlist in January 2009. She received a heart the same year.

Sheble, whose heritage is Citizen Potawatomi Nation, is an MTN Ambassador who’s volunteered since 2013. As a kid, she wanted to be a marine biologist; as an adult, she’s a medical lab scientist. The favorite songs on her playlist are “too many to count” because music is her peace and solace; she loves to rest and relax in the mountains, and when it comes to roller coasters or Ferris wheels, it’s “Roller coasters all day!”

What are three ways that being a transplant recipient has changed your life besides giving you another chance?
It has given me friends that I would have never met, and now I couldn’t imagine life without them. It has helped me see life on a broader scale — that the little troubles are just bumps in the road on this journey we call life.

It has taught me that we have to live each day with a purpose and to cherish what we have. Our family, friends and our experiences with those around us are more important than any of the tangible things we think we need.

Did you have any concerns or hesitancy about being a transplant recipient? If so, what were they?
Honestly, not really. I’d been through so much over the previous 18 years that to me, it was just the next thing I needed to do to keep moving forward on my journey.

How does your Native American heritage influence your conversations about organ donation?
I’m not sure I can say it is necessarily due to my heritage, but I just always want to be an advocate. I want people to know that donation works, so I talk about it as much as I can! I am proud to be Native American, and I am proud to be a recipient. My tribal ancestors were very strong-willed people, so I feel my Native American heritage has prepared me to be successful on my transplant journey.

In what ways do you advocate for organ donation?
Any way I can! I donate time when I can. I talk about it any chance I can, and I try every day to show that through transplant, you can live a full life. You can work, travel, exercise, go on hikes…you name it. I want people to see that if there is a will, you can make your ideals for your life happen. It’s all in the attitude!

Tell us about the Transplant Games. What have you experienced?

AMAZING! That one word sums up the games. Do they always run smoothly? No. But do I ever regret going? NEVER. The games and the people I know from them are what I look forward to all year long. You will always find inspiration at the games! From meeting donor families to meeting other recipients, the competition and the sportsmanship is literally the best thing!

Sheble has participated in the Transplant Games of America and World Transplant Games since 2012 in events that include shot put; discus and the ball throw; javelin; Pétanque doubles; volleyball and pickleball doubles. She’s been to Transplant Games of America in Grand Rapids, Michigan; Houston; Cleveland; Salt Lake City and San Diego, and to World Transplant Games in South Africa, Argentina, Spain, United Kingdom and Australia.

MTN staff holding a large check from Colonial Life

Colonial Life sales team donates $1,000 to Midwest Transplant Network

August 25, 2023/in

Blog

/by Midwest Transplant Network

From left to right: Amanda Liezert and Marie Simms, Colonial Life; Jan Finn and Sarah Oland, MTN. Back row: Terry Shambles, MTN; Noah Costlow and Alex Sanz, Colonial Life.

A sales competition among local teams at Colonial Life meant the winners could donate $1,000 to an organization of their choice.

Amanda Liezert, Agency Manager, Colonial Life, is on the Kansas Territory team, and she has connections to Midwest Transplant Network. She previously owned Tierney Office Supplies, and MTN was a client. In 2002, her husband, John Liezert, received a heart transplant at Saint Luke’s Hospital. MTN was part of their journey. He lived until December 2020.

“Organ donation indirectly gave me my family. We were just starting our lives, and one person’s loss gave us a whole life,” said Liezert.

Amanda’s team won the contest and chose Midwest Transplant Network as their beneficiary.

“There were no second thoughts,” said Marie Simms, District General Manager, Colonial Life. “We know Amanda’s story, we love her and her family, and we know the importance of organ donation.”

The team visited MTN’s headquarters to present a $1,000 ceremonial check, received by Jan Finn, RN, MSN, President & Chief Executive Officer; Sarah Oland, LMSW, Chief Stakeholder Engagement Officer; and Terry Shambles, FACHE, FHFMA, Treasurer & Chief Financial Officer.

MTN Staff Spotlight – Britney Machin

August 23, 2023/in

/by Midwest Transplant Network

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

MTN Staff Spotlight…
Britney Machin, Tissue Services Shift Leader

Britney’s professional career in healthcare includes experience as a community liaison in a clinical setting. She earned a Bachelor of Science in community health with a minor in psychology from the University of Central Missouri. She will complete a master’s in business administration with an emphasis in health administration from her alma mater in May 2024. Britney joined Midwest Transplant Network in September 2020 and is coming up on her third MTN anniversary.

If you had to choose between living without air conditioning or social media, which one would you give up?

I would give up social media.

Favorite local restaurants in the metro?

Garozzo’s, Vietnam Café and Q39.

Your most memorable trip experience — good or bad?

I’m from a blended family, and I’m one of four children. When I was 10, we went to California with all of my siblings and family. We visited my maternal grandparents, went to my aunt’s 50th wedding anniversary, went to the beach, the San Diego Zoo, SeaWorld, Disneyland and Magic Mountain. We packed a lot into a week!

You’re talking about your job to a stranger. How do you explain what you do for a living as simply as possible?

Hmmm…I can tell someone I recover skin from donor heroes to help burn victims. Or I recover bone, skin, tissue or muscle from donor heroes to help other people live.

Tell us about your culture and how it influences your conversations about organ donation.

My culture is Chamorro. My mother is from Guam, the largest of the Mariana Islands in the Pacific Ocean. Chamorro culture is having respect for all people, particularly for our elders, as well as our history and language.

The way I was raised influences how I speak about organ, eye and tissue donation. It’s respect for the donor families because you’re working on their behalf.

My brother-in-law is a kidney transplant recipient of 10 years, and I have an uncle who had multiple kidney transplants. He was nearly 60 when he passed.

Growing up, I heard misconceptions about organ, eye and tissue donation, like EMS and doctors won’t try as hard if organ donation is on your driver’s license. It’s totally false.

In my family, there is support for being an organ, eye and tissue donor. And in my family — due to it directly saving and enhancing so many of our loved ones’ lives — they want to make the decision on their own. If I’m asked about organ donation, I do my best to explain the process and address any misconceptions that I can.

Even though my family is open to organ donation, it’s different when it comes to ocular tissues because when a loved one passes, they need to be able to see their way to heaven. There’s a belief about being whole in heaven and in the afterlife, so organ, eye and tissue donation is personal.

In what ways do you advocate for organ donation?

The work is a form of advocacy for donation. When a loved one passes, you want to be respectful of their decision to be an organ, eye and tissue donor.

Give three reasons why someone should consider becoming a registered organ donor:

Your legacy lives on through another person, and the impact on another life is honorable.
It helps with healing for loved ones because they gave selflessly, and you can be proud of their decision.
It’s very important to tell your family of your decision to be an organ donor. It’s an affirmation of your choice, and your family will not have to make that decision for you.

What else would you like to say about organ donation?

To the donor heroes, “Si Yu’os Ma’ase,” which means thank you or “May God’s grace shine upon you” in Chamorro.

MTN Achieves Top-Tier Rating From CMS

August 18, 2023/in

News

/by Midwest Transplant Network

For the third consecutive year, Midwest Transplant Network is ranked among the top organ procurement organizations in the country by Centers for Medicare & Medicaid Services performance reporting.

The 2023 OPO Annual Public Aggregated Report shows that based on 2021 data — the most recent data currently available — Midwest Transplant Network is rated as Tier 1A and is third in the nation for both donation and transplantation rates.

There are 56 organ procurement organizations (OPOs) in the U.S. Each is ranked into one of three tiers based on donation and transplantation rates; each tier ranking has a letter — A to E — from highest to lowest possible performance.

Incorporated in 1973, Midwest Transplant Network is a federally certified, not-for-profit organ procurement organization that facilitates organ, eye and tissue donation in partnership with hospitals and other professional partners to give hope and share life. MTN’s service area is the state of Kansas and western two-thirds of Missouri, with its central office located in Westwood, Kansas, and satellite offices in Wichita, Kansas, and Columbia and Joplin, Missouri. MTN is commemorating 50 years of service in 2023.

“It is our privilege to support donor families and extend their loved one’s legacy,” said Jan Finn, RN, MSN, President & Chief Executive Officer, Midwest Transplant Network.

“We are proud to have achieved a Tier 1A designation among OPOs. It’s a reflection of our generous donor heroes, strong partnerships, dedicated staff members, and a commitment to innovation and improvement.

“Every day, we strive to save and enhance more lives through organ, eye and tissue donation, and we will continue to focus on these important efforts on behalf of donor families, transplant recipients and people on the waitlist,” said Finn.

More than organ procurement

In addition to organ procurement, MTN:

Recovers tissues for restorative and reconstructive procedures;
Conducts laboratory testing to support organ transplantation;
Recovers organs and tissues in a state-of-the-art Donor Care and Surgical Recovery Unit;
Provides 24/7 response on organ referrals from hospital partners;
Has staff dedicated to supporting organ, eye and tissue donor families with a variety of resources, including a two-year donor family support program;
Shares the importance of joining the donor registry through community engagement;

Has 245 hospital partners in its service area and collaborates with five transplant centers in the care, placement and transplantation of donated organs, including Children’s Mercy Kansas City, Research Medical Center, Saint Luke’s Health System, University of Missouri Health Care and University of Kansas Health System.

Improvements to increase kidney transplants

MTN participates in the national End-Stage Renal Disease Treatment Choices Learning Collaborative (ETCLC), which aims to increase the number of deceased kidney transplants, decrease the non-use rate and increase the use of kidneys with higher expected risk of graft failure. MTN has reviewed the way it manages donors and facilitates the recovery process, as well as the complicated allocation system to identify opportunities for improved data collection and analysis to ensure more people are helped through kidney transplantation.

“By taking a closer look at our donor management, recovery and allocation processes to make improvements and changes, MTN can help more people receive kidneys to improve their health and quality of life. We recognize the concern about kidneys that affect OPOs across the country, so MTN consistently looks for ways to make improvements that could save more lives,” said Lori Markham, RN, MSN, CCRN-K, Vice President & Chief Clinical Officer.

2022: A remarkable year for saving lives

Through MTN, the generosity of donor heroes and their families touched the lives of people in need:

361 donor heroes shared the gift of life, resulting in 972 lifesaving organ transplants.
1,593 cornea and tissue donor heroes saved and enhanced lives.
MTN’s lab performed 35,145 transplant-supporting tests ranging from blood counts, urinalysis, basic chemistry panels and more.

“We are proud to be among the top OPOs in the country, yet we know that we must continue working diligently and remain open to improvements if we want to see continued success. We will always follow our mission and vision to make a positive impact on behalf of all the people and communities we serve,” said Finn.

Legislative Changes

Recently, the Senate passed the Securing the U.S. Organ Procurement and Transplantation Network (OPTN) Act, S. 1668. The legislation will be sent to President Joe Biden to sign.

If signed, the bill will modify how the Health Resources and Services Administration (HRSA) funds and manages the OPTN, a public-private network of professionals involved in the U.S. organ donation and transplantation system. Historically, the contract to manage the network has been awarded to United Network for Organ Sharing (UNOS). The bill “expressly authorizes HRSA to award multiple contracts, or cooperative agreements to support the operation of the network and eliminates a cap on the amount of funding available for supporting the network.”

It’s unclear how the legislation might impact Midwest Transplant Network, however, MTN is supportive of efforts to modernize the U.S. transplantation system which are implemented without significant disruption to OPOs and transplant centers while respecting the charitable nature of organ donation and recovery in a way that encourages community participation and support.

Midwest Transplant Network is commemorating its 50th anniversary serving the people of Kansas and western Missouri. More than 7,000 organ donors from Midwest Transplant Network’s donor service area (DSA) have contributed to over 32,000 lifesaving transplants since MTN’s inception in 1972. Additionally, more than 23,000 tissue donors have given gifts in this timeframe, enabling nearly 250,000 life-enhancing tissue transplants for burn victims, cancer survivors, individuals with sports-related injuries and more.

Organ donor heroes from Midwest Transplant Network’s service area saved the lives of 12 people with an organ transplant in 1972. In 2022, that number was 972, illustrating the thoughtfulness of people in Kansas and western Missouri; the strong support from MTN’s hospital and community partners; and MTN’s commitment to continual improvement and saving more lives.

people next to a poster for Greater Kansas City Black Nurses Association

Building Pathways to Trust with Black Nurses Association

August 10, 2023/in

Blog

/by Midwest Transplant Network

Midwest Transplant Network (MTN) hosted the Greater Kansas City Black Nurses Association (GKCBNA) during National Multiethnic Donor Awareness Month for a staff lunch and learn called Pathways to Trust.

GKCBNA was founded in 1992 by Deborah Washam, RN, MSN, CCM. The organization works to educate the public about healthcare, promote public health, dispel myths and more.

Washam visited MTN to present disparities in healthcare and organ, eye and tissue donation that impact African American communities. She educated attendees about a range of donation-related myths such as distrust in medical care and fears that organs may not be viable because of co-morbidities, that Black people are “last on the list for organ transplants” and that you have to be wealthy to receive or donate a kidney.

She also informed MTN staff members that 30% of the people waiting for a lifesaving kidney transplant are Black, despite Black people making up only 13% of the U.S. population. Although organ donors and their recipients don’t have to be of the same race, Black people are more likely to have a successful match with another Black person based on certain genetic markers and antibodies.

Washam discussed pathways for building trust and changing viewpoints about donation and transplantation to include community education and outreach, listening, and sharing truths and information. MTN staff members agree that working together with Washam and GKCBNA will help promote stronger healthcare and increase the number of transplants.

Our thanks to Washam and the GKCBNA for this informative and inspiring lunch and learn conversation.